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Saving a Family Battling Genetic Disease – A Father’s Fight for His Wife and Children

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Hope for a family torn by tragedy and illness – your help can change everything.

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Campaign created by: זוהר שירינוב
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 Hello, my name is Zohar Shirinov.

I’m married to Hadass and father to two daughters – Avishag and Anael.

 

My wife Hadass is battling a rare and serious genetic condition called NF2 – a disease that causes tumors in the brain and spinal cord. She has completely lost her hearing, her condition is worsening, and she needs me by her side almost constantly.

 

Both of our daughters carry the same gene. One of them is also on the autism spectrum.

A few years ago, we lost our third daughter, Priel, when she was just a year and a half old.

 

Because of the ongoing medical situation, I am forced to miss work on a regular basis.

The financial strain keeps growing, and I simply can’t handle it alone.

 

I am reaching out with a heartfelt request for help – so I can continue caring for my wife and daughters, keep our home together, and survive this difficult time.

Any support – big or small – would truly make a difference.

 

With heartfelt thanks,

Zohar Shirinov

Hadass Shirinov Media Coverage and Personal Story (in Hebrew and English):

 

  1. Xnet (Hebrew):
    https://xnet.ynet.co.il/articles/0,7340,L-4820878,00.html
    This article (in Hebrew) tells our personal family story and was published in one of Israel’s major media outlets.
  2. NF Israel (English):
    https://www.nfisrael.org/hadas-story/
    Hadass’s personal story, published in English on the official website of the NF Israel organization.

“Attached is a letter from Shaare Zedek Medical Center, signed by Dr. Iris Farid.”

https://drive.google.com/file/d/1LssGhcML4FfMuvZgeu6SyM65L_RmivLS/view?usp=drivesdk

 

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